Ammon had his 3 month cardiology check up this week. Everything went well. Dr. P. said he sounds about the same as he did post-cath and unless the insurance requires it for a new blood pressure medication he wants to try out, we will skip the Summer cath for now. We also spent some time with the dietician who is going to let us do a trial run without the feeding tube. Ammon has been doing muuuuch better and its going to be iffy, but I'm hoping cutting out his night time feeds will help him be hungrier in the mornings so he will get all of his calories. We have to weigh him each week for a while to see if he can maintain his weight. If not, we'll just put it back in in a month or so. At least he gets a break for now :) In the meantime, he gets the usual 1 1/2 TBS each meal of starch, protein and fruits/veggies PLUS the healthiest, high calorie foods i can find... avacados, peanut butter, ice cream... lucky kid! Still no snacking, but he eats every three hours so technically two of his meals are snacks.
Today was Ammon's 18 month mark! I happened to be reading a heart friends blog and found this sweetest little story - I loved it:)
"It's a beautiful day up in heaven. Jesus is rounding up his tiniest angels to go live on earth and be born. One of the sweetest angels says to Jesus "I don't want to leave. I like it here and I will miss you." He reassures the scared little angel that everything will be okay, and that she is just going for a visit. She is still not swayed. So Jesus kneels down, and says, "How about if you leave half of your heart here with me and take the other half with you, will that be okay?" The angel smiles and says, "I guess that will work." But the little angel is still scared. She asks,"Will I be okay with only half of my heart?" Jesus replies,"Of course you will, I have other angels there that will help out, and you will be fine." Then Jesus gives the angel more details about his plan. He says, "When you are born, your mommy and daddy will be scared, so you have to be strong, and when you feel weak just remember that I have the other half of your heart. Enjoy your time with your family; play and laugh everyday. And when it's time to come back to heaven, I will make your heart whole again. Always remember that you are not broken, just torn between two loves." Author Unknown
what a beautiful story!
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