~The Speth Family~: Last Dysphagia visit?

Tuesday, September 6, 2011

Last Dysphagia visit?

Last week was very possibly our LAST Dysphagia visit!!! It seems so weird to think that 8 months ago they were all set to install a G-tube and then Ammon had a miraculous turn around and now we are totally tube free (as long as he maintains his weight, that is). Just in the last two weeks his appetite has greatly improved and he seems to WANT to eat - yay! We have started praying more for him to eat well and it seems to be working. Why do we forget to do these things?

The Dysphagia team kept it pretty simple this time. Really, I might have canceled the appointment if I didn't need them for a perscription :) The gastroenterologist, Dr. Ogorman (who is AMAZING) was very pleased with how Ammon looks and gave him perfect marks :) I told her I took him off of his appetite stimulating medicine and she was fine with my decision. I hate that he takes so many medicines that cause dizziness, especially if they aren't working any miracles anyway :) We saw a new speech pathologist/ OT and she was almost shocked. She played with Ammon for a few minutes (checking his cognitive skills) and then said, "You have yourself a little miracle baby, don't you?" I asked her why and she covered up his scar and said, "If this weren't here, I would have no idea this kid is a heart baby." That was nice to hear :)

The dietician was happy as well. She said Ammon is still low on his weight and not gaining quite as fast as they would like him to, but as long as he is on the charts she's happy. She helped me with a few new options for milk. He needs extra calories because his heart works so hard all the time (she said its like he's running a low key marathon that never ends) and the formula he is currently on was made to go through a feeding tube so it doesn't taste very good. We spent the weekend trying different flavors of pediasure, but so far the absolute winner is whole milk fortified with Carnation instant breakfast- which is a total bummer because the insurance doesn't pay for that. Pbbt. I guess as long as he will eat it, I should be happy with that :)

I asked about taking him off of the bottle and they pretty much said no. Really, it was more like, "NO!!!!". They told me how to start working toward it - slowly - but they don't want him to loose interest in the bottle. They said most kids don't drink nearly as much from a sippy as they do a bottle and it is so crucial for Ammon to take in as many calories as he will. They are afraid that if he switches to a sippy and decides he no longer wants a bottle, he will lose too many calories from intake volume and then we would be back to the tube. That is a little frustrating because he is approaching two years and I hoped to have him off of it by then, but I understand their reasoning and I DEFINITELY don't want to go back to the tube.

So that's it. As long as he maintains his weight and continues making progress in eating we get to turn his eating stuff over to the pediatrician - THAT makes me SUPER happy!

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Newest Favorite Quote..

“Every discovery in science and art, that is really true and useful to mankind, has been given by direct revelation from God. … We should take advantage of all these great discoveries … and give to our children the benefit of every branch of useful knowledge, to prepare them to step forward and efficiently do their part in the great work”
(Brigham Young, Deseret News, 22 Oct. 1862, 129).

“The Final Judgment is not just an evaluation of a sum total of good and evil acts—what we have done. It is an acknowledgment of the final effect of our acts and thoughts—what we have become..."
~Elder Dallin H. Oaks

“No pain that we suffer, no trial that we experience is wasted. It ministers to our education, to the development of such qualities as patience, faith, fortitude, and humility. … It is through sorrow and suffering, toil and tribulation, that we gain the education that we come here to acquire.”
~Elder Orson F. Whitney~

"Our women are not incredible because they have managed to avoid the difficulties of life—quite the opposite. They are incredible because of the way they face the trials of life. Despite the challenges and tests life has to offer—from marriage or lack of marriage, children’s choices, poor health, lack of opportunities, and many other problems—they remain remarkably strong and immovable and true to the faith. Our sisters throughout the Church consistently “succor the weak, lift up the hands which hang down, and strengthen the feeble knees"
~Quentin L. Cook

"Why do we need such resilient faith? Because difficult days are ahead. Rarely in the future will it be easy or popular to be a faithful Latter-day Saint. Each of us will be tested. The Apostle Paul warned that in the latter days, those who diligently follow the Lord “shall suffer persecution.”12 That very persecution can either crush you into silent weakness or motivate you to be more exemplary and courageous in your daily lives."
~Russell M. Nelson

"And charity suffereth long, and is kind, and envieth not, and is not puffed up, seeketh not her own, is not easily provoked, thinketh no evil, and rejoiceth not in iniquity but rejoiceth in the truth, beareth all things, believeth all things, hopeth all things, endureth all things."
~Moroni 7:45

"Under the new covenant that came in Christ, the sinner must offer the sacrifice out of his own life, not by offering the blood of some other creature; he must give up his sins, he must repent, he himself must make the sacrifice and that sacrifice was calculated to reach out into the life of the sinner in the future so that he would become a better and changed man... Every sinner so repenting, every sinner so sorrowing for the past by an abandonment of the practices of the past, moves into a new world where, with proper covenants, he thrusts away out of his life the wrongs of the past."
~Church News, 24 Dec. 1960~

"These statements express the reality that our life on earth is a stewardship of time and choices granted by our Creator. The word stewardship calls to mind the Lord’s law of consecration (see, for example, D&C 42:32, 53), which has an economic role but, more than that, is an application of celestial law to life here and now (see D&C 105:5). To consecrate is to set apart or dedicate something as sacred, devoted to holy purposes. True success in this life comes in consecrating our lives—that is, our time and choices—to God’s purposes (see John 17:1, 4; D&C 19:19). In so doing, we permit Him to raise us to our highest destiny."
~D. Todd Christofferson~

Enos 1:9-10
9Now, it came to pass that when I had heard these words I began to feel a ^adesire for the ^bwelfare of my brethren, the Nephites; wherefore, I did ^cpour out my whole soul unto God for them.

10And while I was thus struggling in the spirit, behold, the voice of the Lord came into my ^amind again, saying: I will visit thy brethren according to their diligence in keeping my commandments...

"We demonstrate our acceptance of Jesus Christ as our Savior when we place our faith in Him, repent of our sins, and receive the saving ordinances required to enter God’s presence. These saving ordinances are symbols of the covenants we make. The covenants of obedience to His laws and commandments bind us to God and strengthen our faith. Our faith and steadfastness in Christ will give us the courage and confidence we need to face life’s challenges, which are part of our mortal experience."
Sylvia H. Allred (Relief Society General Presidency)

3 Nephi 9:14
Yea, verily I say unto you, if ye will come unto me ye shall have eternal life. Behold, mine arm of mercy is extended towards you, and whosoever will come, him will I receive; and blessed are those who come unto me.

"This is a troubled world. Discord and disaster are everywhere. It sometimes feels as though mankind itself may be hanging in the balance."Foreshadowing our day, the Lord said, 'The heavens shall shake, and also the earth; and great tribulations shall be among the children of men, but my people will I preserve' (Moses 7:61; emphasis added). We should take great comfort in this promise."
~ Keith B. McMullin"~

Patience—the ability to put our desires on hold for a time—is a precious and rare virtue. We want what we want, and we want it now. Therefore, the very idea of patience may seem unpleasant and, at times, bitter."Nevertheless, without patience, we cannot please God; we cannot become perfect."
~Dieter F. Uchtdorf~

"But behold, the righteous, the saints of the Holy One of Israel, they who have believed in the Holy One of Israel, they who have endured the crosses of the world, and despised the shame of it; they shall inherit the kingdom of God, which was prepared for them from the foundation of the world, and their joy shall be full forever."
~2 Nephi 9:18~

“To access information from heaven, one must first have a firm faith and a deep desire. One needs to ‘ask with a sincere heart [and] real intent, having faith in [Jesus] Christ’ (Moroni 10:4). ‘Real intent’ means that one really intends to follow the divine direction given.”
~Russell M. Nelson~

“When our wagon gets stuck in the mud, God is much more likely to assist the man who gets out to push than the man who merely raises his voice in prayer—no matter how eloquent the oration.”
~Dieter F. Uchtdorf~

"The best counsel for us to give young people is that they can arrive back to Heavenly Father only as they are guided and corrected by the Spirit of God. So if we are wise, we will encourage, praise, and exemplify everything which invites the companionship of the Holy Ghost."
~Henry B. Eyring~

“We hold in our arms the rising generation. They come to this earth with important responsibilities and great spiritual capacities. We cannot be casual in how we prepare them. Our challenge as parents and teachers is not to create a spiritual core in their souls but rather to fan the flame of their spiritual core already aglow with the fire of their premortal faith.”
~Neil L. Andersen~

“We knew that our purpose was to gain a physical body, to overcome trials, and to prove that we would keep the commandments of God. Our Father knew that because of the nature of mortality, we would be tempted, would sin, and would fall short. So that we might have every chance of success, He provided a Savior, who would suffer and die for us.”
~Thomas S. Monson~

“Speaking to the women of the Church nearly a century ago, President Joseph F. Smith said: ‘It is not for you to be led by the women of the world; it is for you to lead the . . . women of the world, in everything that is praise-worthy, everything that is God-like, everything that is uplifting and . . . purifying to the children of men’
~ M. Russell Ballard~

" Yea, and how is it that ye have forgotten that the Lord is able to do all things according to his will, for the children of men, if it so be that they exercise faith in him? Wherefore, let us be faithful to him. "
1 Nephi 7:12

"Temple marriage covenants do not magically bring equality to a partnership. Those covenants commit us to a developmental process of learning and growing together—by practice. ". . . Equal partnerships are not made in heaven—they are made on earth, one choice at a time, one conversation at a time, one threshold crossing at a time. And getting there is hard work." ~Bruce C. Hafen~

"I know it is hard for you young mothers to believe that almost before you can turn around the children will be gone and you will be alone with your husband. You had better be sure you are developing the kind of love and friendship that will be delightful and enduring. Let the children learn from your attitude that he is important. Encourage him. Be kind. It is a rough world, and he, like everyone else, is fighting to survive. Be cheerful. Don't be a whiner."
~Marjorie Pay Hinckley~

"When the Saints in Utah were still struggling to produce enough food to live, they started schools. They felt driven to lift their children toward light and to greater usefulness by education. That drive is more than a cultural tradition passed on through the generations. It is the natural fruit of living the gospel of Jesus Christ. You see it today across the world in our missionaries coming home from their brief service in the field. Those who have planted the good word of God and have served faithfully invariably have awakened in them a great desire for self-improvement. And with that comes a desire to learn more and to gain greater skills."The purpose of God's creations and of His giving us life is to allow us to have the learning experience necessary for us to come back to Him, to live with Him in eternal life. That is only possible if we have our natures changed through faith in the Lord Jesus Christ, true repentance, and making and keeping the covenants He offers all of His Father's children through His Church."So the leaders of the Church have always known that the drive for learning among our people must have a powerful spiritual component. That spiritual element, when it is effective, refines and uplifts the aims of our total education."
~Henry B. Eyring~

"Spirituality yields two fruits. The first in inspiration to know what to do. The second is power, or the capacity to do it. These two capacities come together. That's why Nephi could say, 'I will go and do the things which the Lord hath commanded' (1 Nephi 3:7). He knew the spiritual laws upon which inspiration and power are based. Yes, God answers prayer and gives us spiritual direction when we live obediently and exercise the required faith in Him."
~Richard G. Scott~

"God the Eternal Father did not give [the] first great commandment because He needs us to love Him. His power and glory are not diminished should we disregard, deny, or even defile His name. His influence and dominion extend through time and space independent of our acceptance, approval, or admiration."No, God does not need us to love Him. But oh, how we need to love God!"For what we love determines what we seek."What we seek determines what we think and do."What we think and do determines who we are—and who we will become."
~Dieter F. Uchtdorf~

"Father in Heaven knew that you would face challenges and be required to make some decisions that would be beyond your own ability to decide correctly. In His plan of happiness, He included a provision for you to receive help with such challenges and decisions during your mortal life. That assistance will come to you through the Holy Ghost as spiritual guidance. It is a power, beyond your own capability, that a loving Heavenly Father wants you to use consistently for your peace and happiness."
~Richard G. Scott~

"From your study of Church history, you will all know something of the experience the Prophet Joseph Smith and his brethren had while imprisoned in [Liberty Jail] during the winter of 1838–39. This was a terribly difficult time in our history for the Church generally and certainly for the Prophet Joseph himself, who bore the brunt of the persecution in that period. Indeed, I daresay that until his martyrdom five and a half years later, there was no more burdensome time in Joseph's life than this cruel, illegal, and unjustified incarceration in Liberty Jail. . . ."Most of us, most of the time, speak of the facility at Liberty as a 'jail' or a 'prison'—and certainly it was that. But Elder Brigham H. Roberts, in recording the history of the Church, spoke of the facility as a temple, or, more accurately, a 'prison-temple.' . . ."But tonight's message is that when you have to, you can have sacred, revelatory, profoundly instructive experience with the Lord in any situation you are in. Indeed, let me say that even a little stronger: you can have sacred, revelatory, profoundly instructive experience with the Lord in the most miserable experiences of your life—in the worst settings, while enduring the most painful injustices, when facing the most insurmountable odds and opposition you have ever faced."
~Jeffrey R. Holland~

“Even when you feel the truth of [the] capacity and kindness of the Lord to deliver you in your trials, it may still test your courage and strength to endure. The Prophet Joseph Smith cried out in agony in a dungeon: “ ‘O God, where are thou? And where is the pavilion that covereth thy hiding place?’(D&C 121:1–2). . . .“The Lord’s reply has helped me and can encourage us all in times of darkness. Here it is: ‘My son, peace be unto thy soul; thine adversity and thine afflictions shall be but a small moment; And then, if thou endure it well, God shall exalt thee on high; thou shalt triumph over all thy foes’ (D&C 121:7–8).”
~Henry B. Eyring~

“Our challenges, including those we create by our own decisions, are part of our test in mortality. Let me assure you that your situation is not beyond the reach of our Savior. Through Him, every struggle can be for our experience and our good (see D&C 122:7). Each temptation we overcome is to strengthen us, not destroy us. The Lord will never allow us to suffer beyond what we can endure (see 1 Corinthians 10:13). “We must remember that the adversary knows us extremely well. He knows where, when, and how to tempt us. If we are obedient to the promptings of the Holy Ghost, we can learn to recognize the adversary’s enticements. Before we yield to temptation, we must learn to say with unflinching resolve, ‘Get thee behind me, Satan’ (Matthew 16:23).”
~Robert D. Hales~

"There is a guide for receiving the Lord's power of deliverance from opposition in life. It was given to Thomas B. Marsh, then the president of the Quorum of the Twelve Apostles. He was in difficult trials, and the Lord knew he would face more. Here was the counsel to him that I take for myself and offer you: 'Be thou humble; and the Lord thy God shall lead thee by the hand, and give thee answer to thy prayers' (D&C 112:10). "The Lord always wants to lead us to deliverance through our becoming more righteous. That requires repentance. And that takes humility. So the way to deliverance always requires humility in order for the Lord to be able to lead us by the hand where He wants to take us through our troubles and on to sanctification."
~Elder Henry B. Eyring~

A Future of Peace
"What kind of existence can we hope for? Those who come unto Christ, repent of their sins, and live in faith will reside forever in peace. Think of the worth of this eternal gift. Surrounded by those we love, we will know the meaning of ultimate joy as we progress in knowledge and in happiness. No matter how bleak the chapter of our lives may look today, because of the life and sacrifice of Jesus Christ, we may hope and be assured that the ending of the book of our lives will exceed our grandest expectations. 'Eye hath not seen, nor ear heard, neither have entered into the heart of man, the things which God hath prepared for them that love him' (1 Corinthians 2:9)."
~Dieter F. Uchtdorf~

~The Speth Family~

Tuesday, September 6, 2011

Last Dysphagia visit?

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