Tuesday, September 11, 2012

Deep Breath

Ahhhh... Is it that time already? Because I really did feel quite comfortable in that bubble that allowed me to believe everything was going to stay the same.... forever???? And it will be okay and I have comfort and faith, but its still hard.  Its hard to know your approaching your son's third open heart surgery and he's not even three yet.  Bummer.

Its a bummer because he has grown and learned so much in the last few months!  He is more and more fun to play with and he's funny and smart, and has the cutest little boy smile and he is going to have a fit. Ugh. Losing Ammon is inevitable - eventually it will happen and I won't be ready.  I'm not full of hugs yet.  I need him to maul me and giggle as he tackles me and make faces at me and be his funny little self for just a few...more...years... until I'm old and grey. And then, when my hug basket is full, he can go.

But as for now..... he will go to the cath lab soon and depending on what happens there a surgery date will be determined (Dr. P. would like to do it before the holidays).  They are going to fix, balloon, stent, etc. as much as they can in the lab and decide what construction (in addition to the Fontan procedure) needs to be done (he still has that non expandable stent that has to be removed).

I really do have a comforting feeling about it all, but its accompanied by a lot of dread.  I will feel better when its over.

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