Thursday, September 27, 2012

Latest Heart Cath

Ammon's date with Dr. P in September wasn't as "all smiles and lollipops"-y as it usually is :)  His sats were down, he hadn't gained any weight and no one could figure out his blood pressure.  But he LOVED the fish in the waiting room and didn't even cry during his x-ray this time! As an added bonus he figured out how to turn the lights off in the exam room - even with Dr. P. in the room - fun!


The cath lab called me a few days later and scheduled a cath so they could figure out what is going on in there.  It actually went really well!  First, they gave him lots of stickers, showed him an Elmo that had been painted on the ceiling, provided him with helicopters to play with, and gave him some make you silly juice before they stuck in the IV - Ammon on versed is always funny :) The anesthesiologist told us it feels like you just downed a six pack of beer. Looks that way too :) But after all that fun, we had to take him over to the cath lab.








Its nearly impossible not to utter a big, heavy sigh when you walk into the cath lab and the nurse hands you a pager and tells you it will go off in two to three hours.  John spent most of the time working.  How convenient since his work is next door.  The hospital was in a code yellow (all their computers were down) so he ran around a bit while I tried to work on a Relief Society lesson.

When the pager went off, we met Dr. Gray in the office right outside of the lab.  I actually really like this part (as long as there is good news involved).  He was all smiles and pretty impressed with what he was able to accomplish.  No new stents, but he ballooned some arteries and Ammon's sats have gone up a bit! He also scouted possible locations for two more.  Eventually he would like to stent Ammon's carotids, but since they are smaller arteries, they can get clogged easier so he is going to wait until it is more of a need.  He measured Ammon's blood pressure in all of his chambers and they have gone down so much!  There are still a couple of weird gradients, but nothing to worry about.  He lets us watch all of the good stuff on the computer.  Its pretty cool to watch the before and after as he balloons arteries - amazing really.  I kind of wish we had a copy of that recording :)

Ammon's recovery was awesome.  I was wondering how we were going to keep him laying flat with his legs straight for six hours, but it wasn't a problem at all - the kid barely moved.  Then the anesthesiologist stopped by and as it turns out, he had given Ammon "a little extra" before he woke up to help with the pain.  It worked :)  And he only had to take the tylenol once :)  John stayed the night with him and I went home to feed Madelyn.  Its so hard to balance life when your kids are not all in the same place :( But I picked Ammon up the next morning and we went on with our crazy life...



Anyway Ammon was given the all-clear to go ahead with the Fontan.  Dr. Burch and the surgical team will meet with Dr. Gray and Dr. Puchalski and determine what else needs to take place while they are in there (cutting and grafting the stent in the LPA) and he will have his third open heart surgery on October 24th.  Feel free to send lots of prayers his way :)

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