~The Speth Family~: Testing My Patience

Tuesday, February 9, 2010

Testing My Patience

I think its a conspiracy. The chaplins and social workers are having some sort of conference to discuss my mental health and are then conspiring with the nurses to see what else they can come up with as an excuse to make Ammon stay in the hospital longer and I think they are going to keep doing it until they finally make me crack. Like Chinese water torture. One drop at a time. I won't crack. But I might get a little torked.

So obviously I was not in the right frame of mind when John called this afternoon to tell me that not only did Ammon get his PICC line in, but there is a new NP on this week and the team has now decided that Ammon should try to pass a swallow study. Its scheduled for 1:45 today. If he fails, they will send him home with his NJ tube on Thursday. If he passes, its another 5-7 days while we attempt to teach him to eat from a bottle. I didn't see that 180 coming.

I am frustrated because every time someone new is in charge they rearrange my life. My poor mom is having to take extra babysitting shifts (which I GREATLY appreciate) because Allie had a cold and now has pink eye and Kylie has the sniffles. Thanks to those who called and offered to have the girls over this week, but you don't want pink eye. I have been trying to stay home more so no one else has to take my sick kids, but then Ammon suffers because he is left alone - unless of course his monitors start beeping. If he passes the swallow study, I will have to be there no matter what because I have to practice feeding him.

AND the nurses STILL haven't changed his dirty, yucky bedding. I was there Saturday and Sunday and there was a big yellow stain on the nest where someone spilled a med. Plus, I went through four or five blanket changes because he sweats a lot. The nest underneath was wet with sweat as well, but never got changed. I bet they haven't changed his receiving blanket since I left. Now John is there and said his other blanket which is under all of that is super gross. If he were home I could keep him clean. John is going to talk to them about it. If its still dirty when I get there this afternoon I am going to do it myself.

I'm done ranting.

2 comments:

wanderlustfamFebruary 9, 2010 at 3:41 PM
I love you sister!!! It's funny to me that it has finally occurred to you to lose your patience. You went into the hospital when ... Last September?

I miss you so much and wish I could be home to help out with the girls. I think a Super mom costume for Halloween 2010 would be appropriate.

It's also awesome to hear your fiesty self. You rarely let it show but I think its beautiful. On occasion you could stop a moment next to your car parked in the hospital parking garage and let out a roar!!!!

Te Amo
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John and SuziFebruary 9, 2010 at 8:33 PM
Thanks Tam - the next time I'm feeling fiesty, I know who to call :)
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