I have had a lot on my mind this week (your cue to turn off the computer and run). It started when I followed a link to Paul Cardall's blog. He seems to be a nice guy. He talked about how he has watched so many friends die through the years. Suddenly I realized the road John and I have in front of us - besides Ammons PHYSICAL challenges. My thoughts went back to a story one of my best friends' told me. I talked to her again today and she reminded me of the story. I hope she doesn't mind if I share a condensed version...
Her four year old son has severe spina bifida. Before he was born the doctors told her that he would probably be a vegetable and wouldn't be able to walk. They were so wrong. He is a smart little stinker and runs and climbs and jumps and defies all kinds of odds. Still, he has his difficulties and it has been challenging. He has surgeries every six months to extend, fix or replace the metal rods that stretch from his shoulders to his hips. She said a little over a month ago Adam came to her freaking out, "Mom, Mom! I have a big scrape on my back! He had also noticed a large lump. Mary had to explain to him that he was born with that bump and the scrapes were scars from his surgeries.
I thought so much about this. He is four years old and has just barely figured out that there is something different about him. How old will Ammon be when he realizes the seriousness of his situation? How will we explain it to him? What do I tell him when he asks if he is dying? Do I let him form good friendships with other HLHS kids and subject him to the realities of death, or do I shelter him and keep him from the growth and sweetness of those friendships? What if we don't get to that point? I started to come up with answers, but what if they aren' t the right ones? I want Ammon to have experiences that make him strong and keenly aware of Heavenly Father's arm in his life, and in the lives of those he will associate with. I want him to have great, wonderful, STRONG friends that will bless his life - just as I have had. Friends that bless his life through their genuine goodness and strengthen him with their amazing ability to navigate through massive trials.
A couple of posts ago I said I was grateful for the opportunity to be Ammon's mom. I am equally as grateful to be Kylie and Allie's mom. Just because their hearts work perfectly doesn't mean they are any less special or that their mission on earth is any less important. They have blessed my life with a great big heart full of joy and happiness. I LOVE spending time with them. I LOVE that they are different as night and day- they each bring a spirit so distinct and special to our family. They each teach us to be better - serious and silly - they balance us out. They are inclined to focus on different things, but both are very much needed. Ammon has added to that. Together our family will be complete - just what we will need to make it back to a Father who loves and cares so deeply for us. He has been so close lately (despite my not always giving him proper thanks or attention). He has answered every one of my prayers and kept me constant and humbled and loved.
So back to that road in front of me. I have decided that I like living on a twisty road. I don't want to know what's coming. One foot in front of the other keeps me sane. So, my conclusion is the same as it has always been - trust that when I get to those hard moments - those moments that will define me and John and our children - Heavenly Father will take us by the hand and lead us through with only a few necessary scars. He always has.
Every one of us has such different trials. A woman in my ward recently remarked that although some are seen, many are not. Those are the worst, hardest ones. But I trust Heavenly Father will help ALL. I know he will.
D&C 121:7 "My son, peace be unto thy soul; thine adversity and thine afflictions shall be but a small moment;"
D&C 123:17 "Therefore, dearly beloved brethren, let us cheerfully do all things that lie in our power; and then may we stand still, with the utmost assurance, to see the salvation of God, and for his arm to be revealed."
From my perspective you seem to be calmly riding the ebb and flow of life. If I may, I compare your handling of your life to riding a wave. Your life does not appear like a roller coaster ride, a wave seems more appropriate, feeling at one with the situation, staying relaxed, working with the wave to get you where you want to go. The wave has ups and downs and is challenging and exciting and sometimes seems overwhelming, but then you make it to shore and you are stronger, and are filled with a sense of aliveness. It's a beautiful thing to behold.
ReplyDeletep.s. I know you will figure out what to say to Ammon, you have the spirit and that's all you need. A side thought, Ammon and his experience bring more teachings and blessings to those around him than I think you realize. He is a gift, and your experience with him reminds me that I have two little gifts of my own and I should definitely give more cuddles and less everything else.
Suzi-
ReplyDeleteYour thoughts are beautiful and just what I needed to hear today. Annie had a hard day and so did I- one of those when you can feel the lump in your throat and the ache in your chest for all that your little one is enduring. I know you have been where I am and I appreciate your perspective. As much as I want to know where Annie will be in a month, in a year, and in five years, life does not work that way and I am grateful for your reminder that even with so much unknown ahead, I can walk this path and trust that His hand will be in ALL of it. Thank you.
Thank you so much for sharing your thoughts. I don't know if you know how much they strengthen others.
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